9 Months into Glivec/ Gleevec

It was mid April that Dad was due to his visit to his Oncologist and Endocrinologist. He looks well and we’re glad that know that he has put on some weight. He lost quite a lot of weight last July. Good to note that he is gradually getting back to his usual weight. His appetite is good too! He is eating 7 meals a day. These are small meals and proved to be good for his blood sugar.

At this visit, his Oncologist told us that he hardly felt the tumor. That’s a good sign but he should be due for the next CT scan (6 months apart) in June. He will still continue with Glivec as it is doing its job well so far. New side effect noticed was the sign of brittle nails. They look like old, dried and peeling nails. No pain or any discomfort felt, just the look of the nails. His doctor took a few photos of the brittle nails to report back to the manufacturer, I guess. We couldn’t find any recorded side effect that’s pointing to nail issues. I was thinking could be happening to Dad as an isolated case or Asians perhaps, due to our livelihood and diet?

I also notice a slight dark line on his lower lid but the doctor said that has nothing to do with the drug but more like dark circles. I shall take a note on that and observe it for a longer period of time. His previous water retention on the left ankle and eyes have subsided.

Thereafter, we went over to see his endocrinologist. Dad’s doctor was so pleased with his records and was amazed by his discipline in caring for his health by diligently exercising on daily basis, watching his intake of food and also checking his blood sugar and recording them without fail. By monitoring closely, he gets to understand how certain foods will affect his blood sugar and he will take steps to control himself. On that, I must salute my Dad. He is his own doctor as he wants to be well. That relieves me from worries. I am so proud of him.

My gratitude extends to his jovial and friendly Oncologist, Dr Mellor and wonderful Endocrinologist, Dr Chan for their attention and encouragement. Also to Max Foundation and Novartis for the patient assist program. Support from these people help a lot and let us deal with GIST more positively and giving us hope. We are tracking his progress from each visit to the doctors and so far, Thank God, my dad has been doing well. We shall keep monitoring and praying for his well-being.

Cheers!

~ Alice N.

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