6 months into Glivec/Gleevec

  

I just realised my mistake on Dad’s GIST journal. The title “1st Month on Glivec” is actually referring to 1st follow-up with his Onco after 2 months being on Glivec. Followed by another 2 months, 2nd follow-up and the 3rd in January, which was after 6 months of consuming Glivec.

In the morning before meeting with his Oncologist in January 2015, Dad underwent CT Scan again. We were familiar with the Procedures by then. After the scan, while waiting for the results, we went out for a hearty lunch. Need to be optimistic and the first thing that came to mind was to feed hungry stomachs with tasty hot food.

When we finally met his onco with the radiologists’ reports, we were delighted to learn that the lesions in the liver had decreased further and the size of the tumour in the stomach had also shrunk. However, the signs on the bones remained unchanged, which we have to monitor. All in all, signs had shown positive improvements and that meant Dad responded well to Glivec. Pray for steady route to recovery.

The following day, when we saw his endocrinologist, he was given a thumb-up by the wonderful Dr. Dad then took the opportunity from his good results to appeal for change in prescription to oral medication instead of insulin injections. His Onco had no objections when we spoke to him about it the day before. After much persuasion, she reluctantly compromise with Dad. He still has to take his insulin in the morning but for evening dose, he can replace insulin with oral medication. Dad was to record his blood sugar as requested to see how he responds to the new prescription. Dad has to provide his readings for 7 days. I was so pleased to see how happy Dad was for the little relief from the needle of insulin. That gives him hope that he could perhaps turn this insulin-dependent situation around. He becomes even more optimistic than before! Thank you, Dr Chan and Dr Mellor (the latter for taking time to discuss with the former). Thank God for such caring and dedicated doctors. Thanks to Max Foundation too for the Glivec sponsorship program. We shall be forever grateful! Thanks to the Universe for listening to us, lightening our burden and giving us hope!

I must give the highest credit to Dad. A strong man who is not afraid or even feeling too proud to listen to and take the advice of others (his oncologist, endocrinologist and I). He is determined to get well and therefore is disciplined in his morning exercise and religiously taking his medication. The dad whom I’ve known and love for decades, has always been optimistic and jovial, regardless of the situation he is in. Today, I’m glad to say that he is as optimistic and fun-loving as before, or maybe more. He is a survivor! I’m proud of my dad.

Also, credits go to Mom for endlessly reading articles on cancer and health issues. After surviving a heart attack and went through multiple tests, Mom is now on medication and follow-ups with her cardiologist. Knowing her health risks, she further strengthened her spirit and move forward as positively as possible. Now, both parents are primary care-givers to each other, more like reminders to each other to be well.

I’ve decided to give them breathing space by not monitoring them too closely. I realised my good intention might have added pressure and stress to them to want to feel better, faster. I then return to my old way of weekly chats instead of daily. I was too anxious and worried for them that I made them most uncomfortable and unhappy. Mom was especially worried about me for being worried for them! I learnt from my mistake by letting them be. Instead of mothering them, I revert to my role of being a daughter to them. I let go and move along at their pace.

That brings to me think that as children, there are times when we want to control our parents to do things our way but that is not right. We should sit down and talk it over with them. Let them know our concern as children and listen to their concerns as well. We should then be able to come to a mutual understanding on how to handle challenging situations together as a team. It is indeed pointless for anyone to get agitated and make everyone frustrated. This will only escalate unhappiness and worsen the situation or health condition. Not helpful at all. We have to control ourselves and take it in our strides to think positively and pro-actively. Let’s not react without thinking deeply, especially on such delicate issues, when handling sickness in the family. I know it is tough but for everyone’s sake, especially the unhealthy one, we have to be empathetic, compassionate and have great patience. I believed that when we are optimistic, it can be contagious. Instead of frowning, we should be smiling and enjoy the company of our loved ones.

I shall continue to pray for strength, patience, wisdom and good news for my family!

~ Alice N.

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